Wednesday, August 10, 2011

We Are All Interconnected

I was thinking about The Mystical Body of Christ and how we are all interconnected through Him and I wanted to share a story, as strange as it is, which points to this fact. When I had Myasthenia Gravis I would often have "visual disturbances". Many times half my vision would cut out and I would not be able to see properly for a while.These disturbances are quite common in MG. Sometimes these came with headaches, sometimes not. A bit different from migraines,
I wouldn't get the "halo" effect and get headaches quite that severe but it was still hard to walk around when my vision would cut out, especially in public.

Last month, before we went on vacation, Randy, Michaela and I went out looking for a bathing suit for Michaela. We were at a local department store and I was in the fitting room helping Michaela try on swimsuits when all of a vision cut out. I said, "C'mon, Michaela, we have to leave right now! Mommy can't see right." We dashed out of the fitting room and I told Randy what was happening and that we had to get out of there. He looked at me in shock and we left the store. When we got outside Randy this is what Randy said to me:

"While you were in the fitting room helping Michaela my Blackberry dinged so I went to check the new e-mail that had just come in. I read the e-mail, which was for you. You gotta read this."

I couldn't read it, of course, because I didn't have my vision back yet so Randy read it to me. A young woman who had been recently diagnosed with Myasthenia Gravis had written me an e-mail. Here are portions from some of her e-mails to me:

"I suffered from severe almost sudden weakness when I was 22 years old, I am 26 now. I take medication everyday for Myasthenia Gravis and I had a thymectomy a couple years ago and that has helped. I am a follower of Jesus Christ and a firm believer in His healing power!! I have never accepted that i will be sick for the rest of my life even though my doctors keep explaining that "MG is a chronic disease that you will have for the rest of your life so you just have to find a way to make your life as manageable as possible." I was very active before i was diagnosed. I have a black belt in Karate and played almost every sport, so needless to say this was a huge life changer and i was so weak at the beginning before I got officially diagnosed that I had fallen down the stairs, I couldn't talk, chew or even walk for most days. I have been on a mission to change my diet and try to exercise and find some way to fight this!! I have noticed some good changes due to my Gluten free diet but i know what it feels like to be normal and even though if feels like a lifetime ago I want that back!!! IN JESUS NAME!! I googled "Jesus healed my Myasthenia Gravis" and i was happy to read your blog explaining your experience being healed from this awful disease. I would love to hear back from you."

From another e-mail she sent after I had asked her to tell me more about her symptoms:

"I did have had the worst symptoms. I was working at target and started noticing that my hands were getting weak and it was difficult to straighten my fingers, I had to wear gloves at some points for work and could hardly get them on well I thought it was bad at first but had no idea how serious it really was.I didnt have insurance so i couldnt go to a regular doctor so when i went to ER the doc spent 5 mins with me and said that bc of my hand weakness he said that i had a "pinched nerve" and gave me a prescription for viacadin!!! i didnt even take it bc i knew he was wrong. I was on the computer looking different things up all the time and within a few short months i was having difficulty raising my arms and holding my head up. One night i was at my dads helping them move into a new place and I couldnt do much but that was not the kind of person i am so i pushed myself ( i know now that is why i became so weak) but i didnt know what is was so i thought i could just fight against it i guess. Well I was by myself unpacking and my neck became so weak that i couldn't keep my head up so i just broke down and literally got on my face and prayed and asked God to help me figure out what was going on ... so i got up of the floor and went to the computer where i had explored many other options but never really found the right one (vitamin B deficiency, seizures ,MS) but some how I at that time found the symptoms for a disease called Myasthenia Gravis and it described everything i had a symptom. That was the beginning and it progressed really fast.. but i have no pain just weakness, debilitating weakness.

To make a long story short i went over a year without medication with my body being so weak I was unable to shower without my husband bc he had to do everything for me. I had problems eating, talking, walking, it effected ALL of my muscles. I went to free clinic with the diagnoses that I MADE and a young helpful doctor FINALLY believed me and wanted to help me so he set up a blood test and within a week i was on medication.

There is a huge improvement from now to when i was first diagnosed but i have never accepted that i would be sick for the rest of my life!! I have fought and prayed and cried!! it has been a long difficult past few years.. and now i feel like something amazing is about to happen. I have talked to everyone in my family about you and shared your story and it really encouraged me!!! "

When Randy read her first e-mail to me... to say I was shocked is a huge understatement. What are the odds that I would have a return of one of the symptoms of Myasthenia Gravis at the precise moment that this e-mail came in? The odds seem slim at best. It was as if the Lord was giving me a nudge to pray for this young woman. But why such a strong nudge? This still puzzles Randy and I. My heart really felt for this young women as I could certainly relate to her suffering. She was not the first person with Myasthenia Gravis to write to me but the other woman had a relatively mild case compared to A. Most people would simply chalk this up to coincidence but I no longer write stuff like this off so easily.

 Myasthenia Gravis can be life threatening. Those with severe cases can have "breathing crises" and can die from these. I warned her in an e-mail that if this should ever happen to make sure that her husband called an ambulance immediately. I am praying for A. and I am hoping that some of my fellow bloggers might join me in praying for her. We are all part of the Mystical Body of Christ and through our prayers we can all assist each other here on earth and our prayers for those who are battling terrible diseases can bring healing and help when they need it most.


  1. Oh my goodness Mary. I am so very sorry you suffer with this. But, oh wow, you are right. To have that email come in at the same time you were experiencing a symptom is only of God! I have never really heard of MG. Will be lifting you both up in prayer.

  2. Mary,

    I am praying for this young woman and for you. I hope you don't have any vision problems now.

    Mary, your experience with this illness and the way you suffered with it for years, and especially the way you were healed could bring some comfort and hope to others. Have you considered writing a short book about it. It need not be published in print but it could be made available in E Format.

    God bless.

  3. Don't worry, JBR, I feel fine :) None of the other symptoms came back and I am still healed. It was just weird that over a year after my healing I would experience this symptom of MG at the EXACT moment when a letter came through our e-mail. A twilight zone moment for sure - lol!

  4. Thank you, Victor. I keep you in my prayers too. I was just shocked that this would occur the exact minute the e-mail came in. The odds of this happening are almost 1 in over half a million because that's approximately how many minutes had passed since my healing. The odds are even greater than this really since this disease is rare. Probably my chances of getting struck by lightning were as great as the e-mail and my vision cutting out at the exact same time.

    I may write an e-book at some point in the future when my daughter is older. I know just who to ask for help too (grin)! God bless you, Victor!

  5. Mary,
    I'm so sure God connects us all up in order that we can help one another. Every suffering we have gives us the compassion and experience to relate to someone else in need. One of your missions is obviously to help others who have MG which you understand. Such an incredible story. It can only have come from God.

    And I am meant to share with bereaved parents. I am so delighted to see my book button on your page. I am overwhelmed by your kindness. Thank you. I hope anyone who is grieving and in need of encouragement will see the button and follow the link.

    Yes, we are all linked together by God.

    Oh yes! Thank you also for your very helpful email. I will reply!

    May God bless you, Mary

  6. Hi Mary, I will certainly pray for this young women and continue praying for you. I cannot imagine what the two of you feel and felt. My health and that of my family is one of the things for which I am most thankful.

  7. I totally agree, Sue. Suffering can do two things to us - it can make us bitter if we allow it to OR it can make us very compassionate toward others and can be a stepping stone to heaven. As you say, we are meant to help each other here on earth.

    I definitely believe your story could be a big help to others who have lost a child. I hope people will click on the link, also, and know they are not alone and that others have been through this. I loved your words "Yes, we are all linked together by God." Wish I had thought of that! Great way to express our connection to each other in Christ :)

  8. Victor,
    Thank you :) You know me and computers!

  9. Mary,
    Thank you! Your prayers are always appreciated :)

  10. Prayers for you and the person who contacted you!

  11. Thank you, Colleen. She has a severe case for someone so young. It affects her entire body. I cut and pasted these sections of her e-mail and skipped the parts which contained personal information and things of that nature. I know you can relate to chronic suffering with the RA so I appreciate your prayers (even though I'm physically quite well we ALL need prayers, lol) and I'm sure she will too. You are in mine too :) God bless!

  12. Prayers for you Mary and this woman. I am going to add the book badge for grieving parents to my site too.

  13. Many thanks, Colleen. Prayer is powerful!
    I'm glad you will be adding Sue's book badge - I have it linked to her new site. I thought it might be helpful for grieving parents, too. The stories on her sites are both heartbreaking and beautiful at the same time.

  14. Prayers for you and her both!

    God Bless you!

  15. Thank you, Michael :) I'm going to send an e-mail to you about the new blog this week. I hope you will be able to join us! God bless you, too!